Friday, April 21, 2017

Larry has been in recovery mode....   getting better each day, trying to adjust to our new normal life.  One of the adjustments is how to have his equipment on comfortably....   he has several carry modes that came from Thoratec, with the HeartMate,  but hasnt yet decided on what his main carry will be.  I have gotten him 3 different vests as well..... different situations and activities will decide what way he carries.  

But until his driveline has healed a but more, he is just trying things out to see which is the best way for him. The last few days he has had a lot of discomfort from the breastbones healing....  boneknitting back together, so that ductates how he can carry the stuff.  He said he had similar feelings from his bypass surgery 16 years ago.

It is EXTREMELY important to have his stuff anchored or secured...  one big yank or pull, and his driveline can be pulled out...  causing major problems. Stuff being his controller and batteries.

All of this, to say that tonight at supper, I had a scare. He got up from the table and walked to the sink....  all of a sudden, I saw his batteries going to the floor.  I yelled his name....  THANKFULLY, it was ok.... he had his driveline controller on a band around his waist, so it did not pull. He had just hung the batteries on the back if the chair, and totally forgot to pick them up.  But it made us both stop and think.....   it is essential that we never become too complacent with our new normal journey.
He had just yesterday started trying the waist band strap for his controller.

I realize even more, that all health complications come with their own set of problems and new normals....  i have become much more aware of the people I see and know, and try my best to respect what they are dealing with......   whether visible or not.....

Larry has coped better than I ever thought he would or could.  He has had some bad times, and says he hasnt fully come to terms with it all.  This man has my total respect with what he has dealt with.  I always think of this in terms of us, we, our.....   but it is him.....  with my support....
And we are both looking forward to our future.....

Tuesday, April 18, 2017

Sometimes you just have to LOL........

Today was the first day for Larry for Cardiac Rehab...  was going to be his assessment interview, etc....   when he made the appointmeny yesterday, they said on the Mezzanine....   well, i thought i knew it all.....  yep, really....   but NOT...

i insisted before we left home that it was at the BAPTIST Health Rehabilitation Insittute which is another building beside the hospital....  connected by a covered walkway...  so I called to check and got no answer, just a message...  so I dropped Larry off at the door, had to go to the 3rd level of the parking deck, walk down and get him....   then not seeing any office, i went to the front desk for cgeck in....  the lady had no idea, so she called someone to ask, turns out he was the VP of the thing,  anyway....  WRONG....  it was in the Hospital.... so Larry got his workout before we even got there.

Oh....  before we left home, i texted his LVAD coordinator Tori, to ask her, she sent me this detailed answer telling me how to get to the rehab building...   so yep i thought he had for sure gotten it wrong, after all, I am the navigator.....    WRONG again....  i had not texted Tori, instead texted my cousin Sharon, who was trying to help ne.

Anyway we got there, all is fine, Larry will begin Cardiac Rehab on Thursday, 3x a week for 13 weeks.    He will be on a heart monitor the entire time while exercising....  so that is good.  there will be the rehab guy as well as a RN there,

And on the way back to going to get the jeep, I passed Dr Ransom and another coordinator...  so of course, stopped and chatted.....


Sunday, April 16, 2017