Thursday, April 30th, 1pm
Ok..... update after talking to Dr Charles Sanders who was at UAMS for a while....
they have not received yesterdays labs, but he wants to do labs again in 2 weeks, then again in 4 weeks. He is not going to schedule the AV fistula right now..
he said usually the GFR is about 20 before they do them... and he wants to see where his creatinine is going to level out....
They will do that surgery in TGH with the transplant team and vascular surgeon... when done...
Larry liked him from the hospital,
I think he said his daughter or son went to Lyon... played soccer...
So for now, it is just rest up and continue on....
Thursday, April 30, 2020
Tuesday, April 28, 2020
Tuesday April 28th, 7pm
On Sunday I was disappointed when Larry texted me that his INR (blot clotting factor) was only 1.7... The doctors had told him they wanted it to be at 2.0 before they would release him... His kidneys were rebounding so that was not an urgent problem anymore, but they did want him to be safe... The lovenox shots he might normally use when his INR got low can not be used with kidney problems.... Remember he has a LVAD heart pump....
Anyway I decided to go down and do some work in under house area.. and did about an hour worth, when I moved a concrete block and there was a baby black snake... I didnt scream, have gotten used to the one we do have, but needed a rest break.... so while I was snake breaking, Larry called and said he was going to get to come home after all....
Just what I needed.... so quick shower then headed to Tampa... I was so happy to see him, to touch him, to just be....
He was very weak and very tired, but got him into the house, fed him lunch and we both napped.. dinner, fresh baked turkey breast and homemade egg noodles, lime sherbet,then bedtime... He slept... he slept well....
rested all day yesterday, Had mashed carrots and chicken and he slept last night...
Both yesterday and today we sat out on the deck, and then this afternoon he went down and we sat in the swinging chairs for an hour... tonights supper was meatloaf with homemade bread and green beans... then almond milk peach yogurt....
Today his INR was 2.2... hooray...
Tomorrow is get out for blood work, then Thursday a telemedicine chat with his kidney doctor, at which time they will hopefully schedule his fistula graft for future hemodialysis...
More on that when we know... but it takes several months before that graft can be used, so they are hopeful his kidneys will behave until this access has healed... His kidney problem is not new, it is a result of pancreatitis 18 years ago... and we have been aware of this for 6 years or so... hemodialysis is a given, just not sure when it will have to begin, but I will be training to do it at home... yes I will be sticking him, but the graft will make that easier than having to find a vein...
So I will be adding links now to possibly help a future LVADer that might be facing this in the future.
The foods are becaue someone might be helped.... his diet concerns are :
No phosphorus
Low potassium
Limited Vitamin K
Heart smart
Insulin dependent diabetic...
Yep, really... now I know why I took nutrition in college....
On Sunday I was disappointed when Larry texted me that his INR (blot clotting factor) was only 1.7... The doctors had told him they wanted it to be at 2.0 before they would release him... His kidneys were rebounding so that was not an urgent problem anymore, but they did want him to be safe... The lovenox shots he might normally use when his INR got low can not be used with kidney problems.... Remember he has a LVAD heart pump....
Anyway I decided to go down and do some work in under house area.. and did about an hour worth, when I moved a concrete block and there was a baby black snake... I didnt scream, have gotten used to the one we do have, but needed a rest break.... so while I was snake breaking, Larry called and said he was going to get to come home after all....
Just what I needed.... so quick shower then headed to Tampa... I was so happy to see him, to touch him, to just be....
He was very weak and very tired, but got him into the house, fed him lunch and we both napped.. dinner, fresh baked turkey breast and homemade egg noodles, lime sherbet,then bedtime... He slept... he slept well....
rested all day yesterday, Had mashed carrots and chicken and he slept last night...
Both yesterday and today we sat out on the deck, and then this afternoon he went down and we sat in the swinging chairs for an hour... tonights supper was meatloaf with homemade bread and green beans... then almond milk peach yogurt....
Today his INR was 2.2... hooray...
Tomorrow is get out for blood work, then Thursday a telemedicine chat with his kidney doctor, at which time they will hopefully schedule his fistula graft for future hemodialysis...
More on that when we know... but it takes several months before that graft can be used, so they are hopeful his kidneys will behave until this access has healed... His kidney problem is not new, it is a result of pancreatitis 18 years ago... and we have been aware of this for 6 years or so... hemodialysis is a given, just not sure when it will have to begin, but I will be training to do it at home... yes I will be sticking him, but the graft will make that easier than having to find a vein...
So I will be adding links now to possibly help a future LVADer that might be facing this in the future.
The foods are becaue someone might be helped.... his diet concerns are :
No phosphorus
Low potassium
Limited Vitamin K
Heart smart
Insulin dependent diabetic...
Yep, really... now I know why I took nutrition in college....
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