I still havent talked to him... but nurse Kim relayed to him that I am facetiming him tomorrow, even if he can only listen.... she said he did a thumbs up....
Now has fever 101.5
Ct scan showed he does have some pneumonia
Stool tonight was normal, no bleeding
On a heparin drip too
Doesnt want to drink, but they are trying their best.... of course on iv fluid too
Prayers please
E.... I didnt see your comments, but I know....
Saturday, April 11, 2020
Update 5pm saturday
Breathing issues seem to be resolving, changed him to a heated nasal canula and no more struggles....
infectious disease consulted and started him on antibiotics,
Again NEGATIVE COVID-19
No results on ct scan yet,
But numbers still good,
He is extremely tired
But alert, no confusion, asking questions, oriented....
Larry has talking to nurse Matt about Arkansas and HB....
Dialysis still continuing...
So difficult for me not being able to be with him...
infectious disease consulted and started him on antibiotics,
Again NEGATIVE COVID-19
No results on ct scan yet,
But numbers still good,
He is extremely tired
But alert, no confusion, asking questions, oriented....
Larry has talking to nurse Matt about Arkansas and HB....
Dialysis still continuing...
So difficult for me not being able to be with him...
Just talked to today’s nurse....
Covid was negative
Having trouble breathing.
O was 95, but arterial was 66, so put him on bipap machine
Still on dialysis,
BUN 27
Creatinine 2.3
Glucose 109
Potassium 4.6
Complaining with upper abdomen pain... i informed about his past pancreatitis and pseudocyst
They are going to do cat scan on chest, abdomen, and pelvic area this morning
Possible pancreas has flared..... re; 18 years ago he almost died from gallstone in pancreatic duct...
I am going to do some stuff outside.... need to do something...
But will have my phone, and his RN will call me later....
Please continue prayers...
Covid was negative
Having trouble breathing.
O was 95, but arterial was 66, so put him on bipap machine
Still on dialysis,
BUN 27
Creatinine 2.3
Glucose 109
Potassium 4.6
Complaining with upper abdomen pain... i informed about his past pancreatitis and pseudocyst
They are going to do cat scan on chest, abdomen, and pelvic area this morning
Possible pancreas has flared..... re; 18 years ago he almost died from gallstone in pancreatic duct...
I am going to do some stuff outside.... need to do something...
But will have my phone, and his RN will call me later....
Please continue prayers...
Last night update
I talked to his night nurse at 11pm.... haven't heard this morning, will give them time to do their evaluations before I call.
They did a covid test just as precaution, haven't heard
Added oxygen, his breathing was not labored, but he is a mouth breather, and this is a comfort factor for him.... he uses an oxygen concentrator sometimes at home, o level was 96...
Potassium is down to 4, normal.
BUN down to 32
Creatine down to 2.7
But he had a black stool, which means blood in stool, but that could be because his INR was up to 8, it came down yesterday to 1.4, so they started his coumadin back
Any cards you send, will be held here of course, since I cant get back in to see him.... didn't get to facetime yesterday because he was too tired...
Thank for prayers....
They did a covid test just as precaution, haven't heard
Added oxygen, his breathing was not labored, but he is a mouth breather, and this is a comfort factor for him.... he uses an oxygen concentrator sometimes at home, o level was 96...
Potassium is down to 4, normal.
BUN down to 32
Creatine down to 2.7
But he had a black stool, which means blood in stool, but that could be because his INR was up to 8, it came down yesterday to 1.4, so they started his coumadin back
Any cards you send, will be held here of course, since I cant get back in to see him.... didn't get to facetime yesterday because he was too tired...
Thank for prayers....
Friday, April 10, 2020
Update Friday 4:30
Improving each time I talk to the nurses..... they are so great... nurse David last night asked them to not intubate him because he thought he was ok.... good call.
still on dialysis but probably will stop it tomorrow and just run at night..... to make sure..... still wanting to flush the potassium out of his system.......
most of his number are good now, and his kidneys are working.... peeing good.....
Fuzzy mind mostly all clear Except just the old man part....
Honestly just seeing the change in him from yesterday morning to 9pm then again at 2am this morning, I could see huge changes....
I just woke from a 3 hour nap.... had shower this morning, but I am ok with not being there...... with “not watching him sleep’’.......
That is my advice to any new LVAD caregivers....
yesterday was QTpi’s 6th birthday.... Our baby was as good as she always is.....
Update from 3am.
I got kicked out of the hospital at 3am this morning......but it was ok. Cause I want sure they would let me go anyway... but apparently the person who called me to tell me I could come for 24 hours and bring a change of clothing, forgot to tell the charge nurse.....
When I left he was being dialized
and his number were dropping into the range they wanted them....
potassium from 8 at check in. To. 5.3
Creatanine. 15.9. To 10
INR. 8.5. To 2.2 normal
MAP (bp). 62. To 86. Normal
Heart pump was doing well
He was making urine....
He was extremly tired, but was lucid.... calked to check, but the nurse was in with him.....
My body is really feeling the stress today....
We were doing so well, staying home, enjoying ourselves, when his kidneys decided to just need some attention.... this was a result of gallstones in his pancreatic duct 18 years that shut down his pancreas and caused him to be insulin dependent diabetic....so while not a new issue, it has been silent..
Anyway if you would like to send him an old fashioned card... send it to home... he would appreciate simple postcarf even..... or a signed mask. For him to use...
Thank you for reading this... it is still difficult to write, but we have had 3 more years of fun since the blog was begun
I got kicked out of the hospital at 3am this morning......but it was ok. Cause I want sure they would let me go anyway... but apparently the person who called me to tell me I could come for 24 hours and bring a change of clothing, forgot to tell the charge nurse.....
When I left he was being dialized
and his number were dropping into the range they wanted them....
potassium from 8 at check in. To. 5.3
Creatanine. 15.9. To 10
INR. 8.5. To 2.2 normal
MAP (bp). 62. To 86. Normal
Heart pump was doing well
He was making urine....
He was extremly tired, but was lucid.... calked to check, but the nurse was in with him.....
My body is really feeling the stress today....
We were doing so well, staying home, enjoying ourselves, when his kidneys decided to just need some attention.... this was a result of gallstones in his pancreatic duct 18 years that shut down his pancreas and caused him to be insulin dependent diabetic....so while not a new issue, it has been silent..
Anyway if you would like to send him an old fashioned card... send it to home... he would appreciate simple postcarf even..... or a signed mask. For him to use...
Thank you for reading this... it is still difficult to write, but we have had 3 more years of fun since the blog was begun
Thursday, April 9, 2020
Thursday 11pm.
Finally got to see him.... he is in bad shape... but they are working on him.... and at least Ingot to see him,
He is more lucid than this afternoon, but he has a long way to go to get out if the woods... right now on a scale of 1-10 severity he us at a 10 is what his lvad nurse told me early this afternoon...
But this is more kidney than heart, but it is all a result of his heart conditions....
Severe renal failure.... he is being prepped for dialysis... to clean his blood...
Ok... going back again... so no more phones/ipad for me... tonight...
Finally got to see him.... he is in bad shape... but they are working on him.... and at least Ingot to see him,
He is more lucid than this afternoon, but he has a long way to go to get out if the woods... right now on a scale of 1-10 severity he us at a 10 is what his lvad nurse told me early this afternoon...
But this is more kidney than heart, but it is all a result of his heart conditions....
Severe renal failure.... he is being prepped for dialysis... to clean his blood...
Ok... going back again... so no more phones/ipad for me... tonight...
Prayers please for Larry....
he was transported to Tampa General Hospital this morning by ambulance... I was trying to get him into my car to take him, but he was too weak, so I called 911....
the response by our local EMS was amazing... less than 5 minutes... of course they are only 3 blocks away. But thanks..
Larry is in Severe Renal Failure, and since I am not even allowed in the hospital, Because of corona protocol.... i stayed home. Tampa General is an hour away, but he is still in Trauma Bay in the ER, where he will be taken to ICU... all I could do if I were there would be to sit in the car.....
The team there has bern great, keeping me posted by phone, but the severity is 10 on a 1-10 scale right now.... all numbers are out of whack, and will possibly do dialysis, which has its own risks, that is after they get his bleeding factor down, and his potassium down.... both are at critical levels right now.
I have friends all over, please add his name to your list tonight... I am ok, tired, worried, but ok.... he needs your prayers
I will begin to post again on my blog for updates....
UPDATE AT 9:13 pm on Thursday April 9th...
Ok this has been a bad day all sround, but I know how many people care about Larry and me...
At 4 the hospital called and told be they had made an exemption, and I could come spend 24 hours with him.... I arrived at some point, but am still waiting to see him...
Not good... but they are putting in a central line and will be putting him on dialysis..... dont know time frames... but He does need prayers... lots of them, I am ok, he is not....
My phone and Ipad are needing charging.... but thank you to all of the wonderful health care workers here who have been so great to keep me informed with many phone calls.....
he was transported to Tampa General Hospital this morning by ambulance... I was trying to get him into my car to take him, but he was too weak, so I called 911....
the response by our local EMS was amazing... less than 5 minutes... of course they are only 3 blocks away. But thanks..
Larry is in Severe Renal Failure, and since I am not even allowed in the hospital, Because of corona protocol.... i stayed home. Tampa General is an hour away, but he is still in Trauma Bay in the ER, where he will be taken to ICU... all I could do if I were there would be to sit in the car.....
The team there has bern great, keeping me posted by phone, but the severity is 10 on a 1-10 scale right now.... all numbers are out of whack, and will possibly do dialysis, which has its own risks, that is after they get his bleeding factor down, and his potassium down.... both are at critical levels right now.
I have friends all over, please add his name to your list tonight... I am ok, tired, worried, but ok.... he needs your prayers
I will begin to post again on my blog for updates....
UPDATE AT 9:13 pm on Thursday April 9th...
Ok this has been a bad day all sround, but I know how many people care about Larry and me...
At 4 the hospital called and told be they had made an exemption, and I could come spend 24 hours with him.... I arrived at some point, but am still waiting to see him...
Not good... but they are putting in a central line and will be putting him on dialysis..... dont know time frames... but He does need prayers... lots of them, I am ok, he is not....
My phone and Ipad are needing charging.... but thank you to all of the wonderful health care workers here who have been so great to keep me informed with many phone calls.....
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