Saturday, February 25, 2017

One more thing postive......
Dr Hutchins today said the long term goal is to get him stable, then LVAD, then heart transplant....

Finally.............
So glad we got to Little Rock.


This man has my heart, my love, my respect.
He is my best friend.


He was the reason why I began watercolor painting.
But he is talented in his own endeavors. He has made furniture, 
And he taught himself how to make stained glass windows, and so many other things....


I wanted some orbs from wine barrel rings, he made them




The last post got hung up.....  it shows Anna at the hospital today in Little Rock.

Here is her brother Hayes.... he was the first one to begin sketching in Di's nitebook.



/In Florida the grands got to come visit one by one....  each one had different perspectives...

Madi gave Dziadzia a hand massage

Jackson got to watch them empty the foley bag



Aiden said green peas and mashed potatoes were his favorite





We both love to travel.....  we decided to get an RV and explore as much as we could while we could....   we have since upgraded to this coach.....  have been to Key West, to San Diego, to Oregon, to Niagara Falls and points in between.....   simply gorgeous country we live in....  also had gone to Alaska, and Caribbean Cruises, and then there were the FREE cruises, a month in Med Sea, and 2 weeks thru Panama Canal with me teaching watercolor on board Cunard and Celebrity Cruise lines....




Larry.......


Smile, when we married 15 years ago, he was afraid of dogs.....   not anymore.
LitaBit in pink is more his dog than mine, QTπ in purple is my main cuddler, but she loves her human daddy too.




Stable through the night... no more vtach episodes....   his cardiologist is in hospital today and tomorrow, i see him randomly walking by, and he will stop, look in and even chat....  that is such a wonderful feeling....

Was concerned as to which nurse today...  just getting to know this staff.... M is so cute, from KY, her husband is from Clearwater FL area, and he us doing a Anesthesia residency at UAMS....

NO words yet on doggies, i am now ready for them.....  will call and check on that...

A few of you have asked why we are at Baptist Health Medical Center - Little Rock.....
**of course like everyone who know the names of hospitals here, they think why not go to AR Heart ahospital.  That was our girst thought,  but Heart is only classified as a vlinic, they do not have ICU to ICU transfer so that was not a possibility.
**second option was UAMS, we consider this to be our home hospital, mysons did med school and residenc there.  We have a super PCP, Dr Sara Tariq, who we both LOVE, and Larry's cardiologist Dr. James Marsh, and nephrol, Dr Arthur....    i talked to Sara by phone while trying to decide, she said they could take him, so we were then going that as a landing....  UAMS would then be consulting with Baptist....
**so with all if that information, we decided on Baptist......   this is where we need to be... his doctor here Dr Steven Hutchins orked with Dr Marsh and has talked to him since we got here... as has the nephrologist also talked to the one at UAMS.  Here I feel hiscurrent doctors are discussing with his other doctors... and i feel they are CO-ORDINATING...  

So that is why our transfer was from Tampa to Aptist Little Rock......   i had forgotten until Arb reminded me, Baptist has RV hookups on their parking lot.....   but home right now is better, the rv isnt back yet, and the pups when they do get back will have their yard.....

And it was cold here this mirning....32, brrrrrr


Will be adding some random pictures of my Z.....  this was on Lake Michigan....





Friday, February 24, 2017

Leaving is the hardest.... leaving to come to the rv, or to home....  too quiet.
Plus no TV, which is probably a good thing, but the Directv receiver is in the RV, as well as butter, mayo, mustard,and all of those basic things.  No doggies....  that too is hard.

But just leaving, i feel selfish when I leave,,,,  i feel like I ought to sit with him...

I will say, I was so impressed with the CVICU nurses and staff this afternoon, when the ICD went off again, they were in immediate action, this time before I knew it went off, unlike the hospital in Florida....

Larry didnt even know what had happened.. he said he just opened his eues and there were all of these people in the room.....  these people have my total respect....

As I was leaving Chase asked me the address of this blog..... thank you Chase...

Ok i am going to sleep.... when I got home I realized just how sleep deprived I was....

Oh forgot...  when I did go out to the parking lot, some stoooopid idiot had parked so close that i could not get in......  this tired 65yo lady gad to unladylike get in the passenger side and climb over the console with am already hurting back.....  really.....  guess that got my bp up enough to make it home.....  

Prayers... for my sweet hubby please....
Quiet......
the giant is sleeping.....  lol....  my thoughts as i

Oh crap..... this is what I was writing, when the alarm went off, nurses, doctors came running.
Dang fast response time.....   vtac, his ICD zapped him again.
All is ok for now.......   breathe in and out..... him and me

They are waiting on labs, but think was caused by meds.....

I really think we are in the right place.....

He has seen the 2 transplant cardiologists, one is his admitting Dr, the other his partner.
          He is a former colleage of his other cardiologists here, and he even gave me his cell phone
           Number to give to my sons and wives...
We are in a CVICU, where their primary mission in cardio......
We are close to home, so I am not in limbo....

Ok last nights Air Ambulance team was simply awesome....   at no time in the private jet did I feel in the slightest but uncomfortable or anxious.....  i will get name and post later, but this was what Family Motor Coach Association membership does.........

Right now, i am giving this quick update, then I am going to grab a bite....  got to my house at 12,
Got up at 5;30, then back over here, because they were thinking of a cath again.....   postponed that until they gather more info.....

Great team.....  this is where he was treated for pancreatitis, second heart attack and stent....  i have used this hospital for years....

Iy occurs to me that many of you do know my sweet husband, so i will do a blog on that when I have some time.....

Btw.... no visitors, no phone calls, no flowers....   he is extremely aware of what is going on, and we talk a lot, but he is on oxygen mask, so that is limiting......   and he is sleeping a lot.....

Thanks to you all.....  positive energy is felt....

Thursday, February 23, 2017

We are in ICU, room number has changed, but could change again....
Waiting to see the cardiologist on call,
He did really well on the flight, no problems at all... in fact he slept most of the way.
It was just a 2 hour flight, and with transfers both ways, about 3 hours.

Sorry that some of you were waiting to hear, but it has been busy with getting him admitted again....

Thanks for guiding us with your angels......
and I dont ever want to take a private jet ride like that, ever again......

Our pilots, our nurse Tina, our paramedic Jay......   were our angels tonight....
What a team....  awesome....
5:30 is the estimated time we will be leaving this hospital.
Reminder we are still on eastern time.

Ambulance to airport, then lear jet....   air ambulance came out of Georgia, dont know the company...
But the nurse here has been on the phone with the air nurse Tina, and also with the nurse in Little Rock.......


Had a bad scare an hour ago.....   he was having some vtac, and his ICD went off....  i was in front of him talking and that was scary....   he doesnt remember it, but his pulse was always good, and his breathing too......

I have no idea of what time we will get into Little Rock....   but I will stay at the hospital tonight.
Then will worry about getting to the house tomorrow to get the car....   hmmm maybe i will see if uber works....   pretty sure i will need a shower....   dirty hair....




Looks like it will be between 3 and 4 est....

Prayers extra strong

His ICD just zapped him....
stable again now.....


Transfer possible later today, or definitely in the morning...

Waiting on room number for transfer.

Baptist Health Medical Center - Little Rock
9601 Baptist Health Drive
Little Rock, AR 72205

501-202-2000

Baptist-health.com  

Would someone please invent comfortable hospital furniture.....
Hard couch bed, straight chair, tiny ledge to put my things on.....
But even worse, hard "stryker" bed.....   supposed to be the 2nd best bed available,
Larry says no way...  he had the 1st best before he got scooted to PCU...
he prefers the hard wheel chair recliner.....   lol....  it has a push bar on back, wheels, brake...
I think the grands might enjoy it, but he sure doesnt.

He got some sleep....  but his kidney numbers are stiil not good...up
WAITING for transfer.......  waiting for transfer.......  time warp.....

He just asked me if i had ever flown in a lear jet......    nope, he keeps giving me new adventures.
Lear jet that is an air ambulance....  

Gotta find some coffee......   waiting on transfer....

Wednesday, February 22, 2017

Waiting......
All decisions have been made, contacts have been made,
Just waiting on final insurance approval..... which I am now told can be even 2 days.....
I was first told by the staff here that it would be almost immediately.....

We do have FMCA, and one of their benefits is to provide air ambulance to get us home,
They will get a driver for the motor home, and fly the doggies back home as well.  Family Motor Coach Association......  i am so missing my pups... they snuggle and know when I am sad....  QTπ is my snuggler, LitaBit snuggles with Larry.....

But it is just hard waiting.....  i went back to the RV this afternoon to shut it down and close it up....
Really not hard to do because it is all motorized,

BUT somewhere this afternoon, my engagement ring was lost, it wasnt too loose, so i must have caught it, but i have no idea....  that is bad, but i lost a small diamond out of my wedding ring on the way to Tampa........   seriously am glad i didnt waste money on the lottery....

But putting it all in perspective, Larry is still improving in strength, is able to get out of bed and into a recliner by himself... every hour i get to have with him, is one more hour i will always treasure...  he is having a very positive attitude, which when it comes to pain and hurting is very out of character for him, even the grands know that......

After I got back to the hospital, told him about my ring, had a BIG CRY, then i turned around and there was this.........








Decision has been made, air transfer to Little Rock...
Not sure when, but it could be tonight most likely tomorrow...
But when it does I will try to let someone know.....  or on here....  or   .. or.... or

Thus carosel really is spinning fast
Packing up for air ambulance back to little rock..

LVAD most likely... will post when i can
Wed, Feb 22    8:15 am

I did go back to the RV last night...   about 9pm, on the way home, I was like, uhoh I forgot to eat dinner again....  but just too tired to bother...   a few bites of cheese...

Wide awake at 5:30, so thought I would get dressed and make a stop on the way back to the hospital, but again, thinking fuzzy... i am in the subburbs of the suburbs, even Walgreens was closed....  lol...
Kinda like being back in a small town..

So at least the hospital cafe was open, coffee,,,,,,,  met his yesterday day nurse coming out, not in.... she thought she was on the schedule for today, she wasnt...  so at least i smiled....  this beautiful young nurse datws a surgeon....  my cafe peeps know me now, so does the reception desk peeps....  not all me talking, they all seem to be  talkers as well....

Ok.... Larry beat me getting up, was in the chair, had been for 2 hours, so went back to sleep.
Kidney numbers were not as good today, so that means med adjustments.   But really they adjust ALL meds constantly....   

Reminder here....   he is insulin dependent diabetic because of gall stone blocking his pancreas in 2002......  his first heart attack and 5 bypass was in 2001, before we met.  Another heart attack in 2007... then a ICD, then a replacement ICD...  

Ok, back on focus, he was having shoulder and slight chest pain, so dose of morphine,  he is drifting off for some dreams right now....   

HE JUST SMILED at me and said ''I am not through fighting yet" .......  
he does not like pain or discomfort at all.....   man thing right?

Another of the cardiology team came in, and now they are saying he might be stabilizing enough to get him back to Little Rock.....  no time frame....   just thinking ahead....

Thank everyone...  








Tuesday, February 21, 2017

😷😷😷😷
Ok....  hmmmm it is now 6;30 pm.... seems like it was three days ago that I made the last post....

What a busy day......

Kidney numbers are still too high, ☹️
Blood pressure almost too low, good😀
Oxygen levels maintaining

Doctor this morning said he is transplant eligible

So we are still moving forward.
He is now able to get up with little assistance and move to the recliner.

Christie brought Aiden up to visit.   Such an uplifting visit...  Aiden is 3 and is not at all intimidated by the hospital environment...   in fact, he shared Larrys tray, prompltly eating up the nasty green peas......  





Hoping for a restful night...




Tuesday FEB 21, 10 am
update

Still in the ICU,  but get great care, and I love the nurses....   have liked the majority of the doctors as well..

Mentioned possibility of step down room today, but now it will not be until tomorrow.  Still looking at 10-14 days in that room, then possibly rehab,

One improvement causes other complications, or so it seems...   he is doing better and able to sit in a chair, and is taking steps to the chair, not just shuffling....

Is is eating real food in small amounts.

Reduced down from 6 IV bags to 3 right now, names of them are not in my vocabulary.

Attitude not as up today as yesterday, because he much more aware, and now knows that is is aching and miserable...    

cards would be nice,    No flowers etc as we are still in ICU, also room number might change.

St Joseph Hospital-North,
4211 Van Dyke Road,      
Lutz, Florida   33558

I see improvement, but only by inches....  

I know you are all concerned and want updates, but it takes me 30 minutes to write an update, get it ready and send via 3 different avenues to about 20 people now.....  
sending to a group hasnt worked out because of different devices you all use.

Also, i started writing this an hour ago, between nurses, etc, 2 doctors, and others it is slow.
But no complaints from me, just will send as I can.....

Still trying to limit my calls, he just isnt up to conversations...
But i relay names of who are sending info.....  and can pull them up when he might feel like it.
Really cards right now would be huge.....

Ok another 40 minutes.......
Stopped heparin drip.
Moving him to PCU - Progressive Care Unit.

Room # is now 3277, which is a step up for him, but unfortunately for me, it means I am running myself ragged again.....  

I just cannot find time to update each of you as i want, and as you want....  so I am creating this blog to simplify for me.....  i can post as I have time, you can read as you have time......

I will not send out individual reports.....  i just cannot