Sunday, January 26, 2020

Photos from the past year.

I had hoped they would load in chronological order, but they did not.....  one of these days I will sort them out, but not today....  the sunshine is calling me....














































Fast forward a year

Or fast forward a year and a half.....

Will share pictures , but In the next post, I get distracted if I stop to find the photos...

Ok, will pick up from last post.....

We had just bought our lot here in Hernando Beach, Florida.  And were living in our rv...  tried to stay on the lot, but there are ordinances that we could not until we were under construction....  so we had to find a rv park for the winter....  not easy to do, because that is the full time....  snowbirds come in, but we found one, Topics RV Park, had to move 3 times in park, but they were vey nice.

Found our home....  we bought a modular home... it is NOT a mobile home, modular means it was built in a factory....  it is stronger than a stick built home but was not out in the rain while being built.

Our lot had a concrete slab on it, which we had hoped to reuse, but nope even though the dimensions worked, county said it had sat too long.... so had to get that removed....

Then they were finally able to build the concrete blocks that the house would be set on... they are 14 feet in the air....  so the house had to be brought in on 3 huge trucks and 2 cranes lifted it up in the air to the pilings....   we met a lot of our neighbors during this process because it is such a rare happening.....  

But at least then we were able to move our rv back to the lot, and it was fun watching it.....
got to move in April...   so we had sold most of our furniture, so I enjoyed buying new....

Then came cleaning up the ground....  Larry had found a great new product of plastic grids, and since we were trying to be low future upkeep, we ordered it, but first laid down ground cover.... I am talking about on 80% of our lot... and since Larry cant do much work... i am getting really fit....

Finally sold the house in Little Rock... sold too cheap, but at that point we just wanted to be done..

Then got 2 huge dump truck loads of limestone rock, some small, some boulders....  and finally got them all placed.....

Then came plants, yep I did all but the 2 trees....

In July, Larry slipped and fell, ended up in hospital for 5 nights, and a month of iv antibiotics.... yes, I learned to do those...  3 each day, 2 were by iv push, one was a bag....but all is ok. Very scary but I did it.

Settled in, learning to relax, but then last week he had to have the cord changed between his driveline And his controller, he had gotten a split in it....

Enjoying each day in our vacation retirement home...  Larry is doing ok, tires easy, but we work around it....  he usually goes shopping with me, and we go out each day to sit in the yard.
he is not heart transplant eligible because he would also need kidneys transplanted... Dr Mackie said he just did not think he could survive,  but he has 1 year of age eligibility if his kidneys miraculously get better....

Still have the rv, but are beginning to get It all emptied out so we can sell it.  We would like to get a small one but that will be seen....  we just know we cannot do the 40’ anymore....  i dont want to drive, Larry should not be driving, and we will never do long distances again anyway.  Need to stay closer to lvad hospitals...  but as another test in this process, I sold my jeep wrangler... that was tough because I so loved my jeep, but i bought a big girl car, Mazda cx5....  love it, sporty but nice ride... NOT towable by rv... so that was a huge step in our future.

I cannot say enough great things about our new LVAD team... they are awesome.  We are pleased with receiving such a great new team as we were missing our other team in Arkansas...

Life is still good for me, after 3 years of heart LVAD I hope it is for Larry...

changes, adjustments, flexibility, missing the 2 grands in Arkansas, but getting to know the 3 grands here... downsizing, simplifying, finding I had out strength to go with inner strength...  meeting new people, Buying new things that I had just sold...  lol yep sold some of what I should have kept.

I would do it all again to get to where we are....  together with my love, my best friend, my husband, Larry Ziemski, for another day, another week, or hopefully many more years....

Friday, October 26, 2018

why have I been so quiet...   lots of reasons.......

1.  We decided after a trip back to Tampa in May, that thus was the area we wanted to retire to.   LOL really.... yes we have been retired, but traveling the way we did, it seemed like travel was work....  I am still awed at exactly how much we did travel....   but now we have decided to slow that down and watch the water....





2. Moving was not the hardest part....  but that did involve packing up....  we decided to sell most of what we had accumulated, so that involved an estate sale.  I really thought that wouldbe easy, but the first company we contacted turned us down, but they gave us a name, and we found Deena, who has continyed her mothers business, Estate Sales by Bettye Bogart.

3. Next was looking for a realtor.  Our last realtor had retired, so went on the search.... Johnny McKay, with Crye-Leike was who we hired.  Turns out his mother was a hometown friend of my older cousin....  unfortunately for us.  THE HOUSE HAS NOT YET SOLD.   Even though it is listed at a price way below the apraused amount.





4. we have an RV, so we have temporary housing, just didnt want to live in it indefinitely.  Chose to rent a pod for the stuff we didnt sell....  that pod is still in storage until we get to a point where we need it...  great option....

5. Bought a lot, love the lot, peaceful area, on a canal just a short distance from the Gulf.  Remember Larry has a LVAD, so he is not allowed to swim, etc.  water and electricity do not mix....

6. thought changing doctors would be no problem.....  wasnt thinking about the LVAD programs releasing and then another accepting Larry.  For us it has been easy, we had a super vad team in Little Rick, and we have found another super vad team at Tampa General Hospital.....  the main adjustment has been in changing the dressing supply company, but that has worked too....

7.  Getting acclimated into the new state has been fairly easy, it just takes time.  
New license, tags, banks, voting registration, mail changes, and endless address change forms. 
New stores, groceries, so glad there is internet to help.

8. New home....  still working on this one... taking longer than we had planned, but are negotiating on a great modular home.  It is already built, have to get the piers done on the kot, then they will yse cranes to lift the home onto the piers...   

9. Then we will have the pod delivered, unpack it, then begin replacing the furniture we will need....   
we are still enjoying the process and looking forward to many years sitting on the deck together...  

So...  while we are both now 67 years old, we are taking charge and trying to get more life....  Larry is feeling better than he has in years, me too.  I am embracing the older better me...  and liking the person that I am....  to include my gray again hair..  used to be BAG, blonde after gray, now I am GABAG....  gray after blonde after gray......   

More to come....  


Thursday, October 25, 2018

LVAD Shirt, new product


my last sentence of my last post said I will try to post more often....  but I havent...  until the other day, I really thought no one but my mother read these......

Now I know that others do.....  I received an email the other day from a guy in Poland who awked if I would like to try his shirt.....  I say me, cause I am the verbal one, Larry is quieter.   I responded that if that was a hoax, I wasnt interested....   he responded back, now we have one of his shirts... Larry put it on this morning....  after talking with Larry about it, he has seen it online as well.... and had thought about ordering one.....   SMILE, he will order another one.

Larry has had back pain which has limited his willingness to move about. He tried every product he has found, and still switches them around....  I am a seamstress, so I have made vests, modified vests, and deconstructed backpacks.  He has bought vests, cargo pants, and recently been wearing football girdles....

So here is my review of this product. LVAD SHIRT   https://www.lvadshirt.com

*When Larry was putting it on, he immediately looked back into the package for instructions.  There were none.  We pulled up the website to make sure there was no secret way to do those wires.  My suggestion is simple, put a photo of the shirt in the package.

*Larry then placed it on and said.....  it is very true to size, European sizing is not always the same as herein USA, but this shirt was.  He did get the XXL, and we have not washed it, but it wont shrink because of the fiber content.  

* It was easy to put on, and once on, Larry said the battery pickets were in a really good place, not too high, nor too low, and he liked them being more under his arms.

*Even though we were gifted this shirt, he got to choose color, black, and he chose sleeveless.  The underarms come down low enough to comfortably wear as an undershirt, the neckline is low, and the hem/tail is plenty long enough to stay down.

The price of this shirt is cheaper than any of the other shirts he has ordered.  And even though it was mailed from Poland, we received it in less than a week.....  this is the first time Larry has gotten a product to try,  but I would give it an honest evaluation either way.  I only put the products on my blog that I feel are worth it.

The only negative Larry has, is that there is no pocket for the controller...  he has the controller in his pants pocket right now.  We are in transition, so his belt control holders are packed up somewhere.


I found your website searching on the internet for LVAD (I am a patient who has had Heartmate
implanted since 2014). It’s great, that you want to do something for others! I am trying to help
patients in Poland myself, i.a. by VAD Poland Association, which was established together with
other patients. In order to thank you for your commitment I wanted to offer you LVADshirt
(www.lvadshirt.com) that I created for LVAD patients. If you agree to accept it please give me
the type (t-shirt / tank top), color (black / white) and the size of the shirt. Please provide me your
address and I will send it to you. I will be glad if you review this shirt on your blog.

Regards,
Michal Jakubowski

Thank you Michal,  ok now some photos....br />

  







Monday, July 23, 2018

Making quick decisions

Wow.... it was such a short time that I made the last post... but we have done so much. House is now listed on the market, have 98% of the packing done.... that was a task, sorting through what to keep, what to store and what to sell...... The pod is being delivered one week from today, movers the next day To pack it up... August 1 we will begin living in the RV, finishing up our life here in Little Rock... August 17-19 is the estate sale, just about all of our furniture is to be sold. Then plans are to head to Florida about the 23rd of August.... We are excited to begin this new adventure... hopefully our house will sell quickly so we can move out of the rv.... Will try to update more often....